Perinatal & Pediatric Palliative Care
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SHINE Perinatal & Pediatric Palliative Care Program
The SHINE program (Sharing, Healing, Inspiring, Nurturing, Enduring) is the perinatal and pediatric palliative care program within Blank Children's Hospital. SHINE offers an additional layer of support for pregnant women, children and families.
Perinatal palliative care focuses on the care of families facing a devastating diagnosis in their unborn child and the length of the child's life is expected to be shortened or the baby/child may have significant suffering because of his/her condition.
Pediatric palliative care focuses on the care of children and families living with a serious medical condition that could shorten their life expectancy and affect quality of life. In keeping with the general concepts of palliative care
(communication, pain and symptom management, cultural sensitivity, grief and bereavement) the SHINE team walks with the family throughout their journey beginning at the time of diagnosis. Palliative care is not a place; it is more a frame of mind. It is a way of caring for the patient and family with dignity and love.
The team sees patients across the continuum of care and consists of:
- Nurse Practitioners
- Child Life
- Pastoral Care
Referrals to the SHINE program will come from a variety of sources: obstetricians, perinatologists, pediatricians and primary care physicians.
- Symptom management
- Psychological, emotional and spiritual support
- Help with family and health care provider communication (including family meetings)
- Assistance with difficult conversations (IPOST/End of Life/Hospice/Birth and Journey Planning)
- Aid with the coordination of inpatient, outpatient and home care (including home palliative and hospice care)
- Providing support for other children in the family
- Bereavement follow-up to families whose child has died
A physician's order is required for a visit from the SHINE team. Please ask your provider for more information.